Garrett Matthias: The boy who lives on through his obituary

Five-year-old Garrett Michael Matthias saw his hair fall off but his smile never seemed to fade. He endured months of brutal treatment for a rare cancer that ultimately took his life July 6. His obituary held a last message: “See ya later, suckas!”

Garrett, of Van Meter, a city of about a thousand people 20 miles west of Des Moines, was first diagnosed with alveolar fusion negative rhabdomyosarcoma in September. It’s a rare form of cancer that attacked his temporal bone, cranial nerve and inner ear.

Throughout Garrett’s treatment, his mother, Emilie Matthias met many other families with children battling pediatric cancer. She and her husband, Ryan, went to several funerals in the last nine months. Garrett would ask where his parents had been and wonder why they came home sad, Emilie said.

“He would say, ‘Why are funerals so sad? I’m going to have bouncy houses at mine,” Emilie recalled.

During this time, Emilie said she and her husband talked to Garrett about death when the topic arose after a sad moment in a movie.

“I’d say things like, ‘When I die, I want to turn into a star,'” Emilie said. “He’d say, ‘I want to be burned like in “Thor,” and then I want to become a gorilla.'”

The two began jotting down Garrett’s comments.

In mid-June, they found out Garrett’s tumors were treatment-resistant, and he suffered severe headaches and back pain. The cancer had surrounded the lining of his brain and prevented the regulation of spinal fluid. Doctors told Garrett’s parents that his cancer was terminal.

It was then that Emilie and Ryan decided they didn’t want to Garrett to have a normal funeral, sans bouncy houses. That same desire translated to Garrett’s obituary. They began to ask him questions similar to those on a geting-to-know-someone questionnaire.

“We really tried to use his words, and the way that he talked,” Emilie said. “Garrett was a very unique individual. What I really didn’t want was for his obituary to be ordinary and to have a really sad funeral. We’ve cried oceans of tears for the last nine months.”

The result was a breathtaking obituary in which Garrett describes things he hates (pants) and what he wants to do when he dies (turn into a gorilla and throw “poo” at his dad).

The obituary is also bold and frank about the horrific treatments Garrett endured, something Emilie said she wanted to include.

When Garrett was first diagnosed, doctors were blunt with Ryan and Emilie about the reality of cancer treatment.

“It’s not those beautiful commercials with these kids with bald heads that are smiling and everyone is cured,” Emilie said. “They were upfront that chemo is poison, radiation, burns. The other way is to cut it out. You choose and make hard decisions about poisoning, burning and cutting your child. Those are things nobody should have to do. Those shouldn’t be the ways we treat our kids.

“Cancer is horrible. This kid is awesome and he died of cancer.”

Since Garrett’s death July 6, the family has received help from neighbors, friends and family. The obituary also links to a GoFundMe page for the Matthias family.

Garrett’s day care found five bouncy houses for his funeral. There will be snow cones, other carnival fare and fireworks. A neighbor is allowing the family to use their pond to float a small boat carrying Garrett’s ashes while a local archer will shoot a flaming arrow onto the structure for a truly “Asgardian” send-off.

For now, the “Great Garrett Underpants,” as the family calls him, said “see ya later, suckas!”

Read the full orbituary here:

Garrett Michael Matthias AKA “The Great Garrett Underpants”, of Van Meter, Iowa –

My name is: Garrett Michael Boofias

My birthday is: I am 5 years old

My address is: I am a Bulldog!

My favorite color is: Blue…and red and black and green

My favorite superhero is: Batman…and Thor, Iron Man, the Hulk and Cyborg

When I grow up: I’m going to be a professional boxer

My favorite people are:

Mommy, Daddy, my sister ‘Delcina’ (Delphina),
The grandparents with the new house (Fredric and Cheryl Krueger),
The grandparents with the camper (Daniel and Nita Matthias),
My cousins Grady, ‘that guy I took down that one time’ (Luke) and London Marie,
My auntie Janette and stinky Uncle Andy (Andrew and Janette Krueger),
Those two guys, you know, my uncles (Kristopfer Krueger and James Taylor)
Batman!!
The things I love the most: Playing with my sister, my blue bunny, thrash metal, Legos, my daycare friends, Batman and when they put me to sleep before they access my port.

Things I hate: Pants, dirty stupid cancer, when they access my port, needles and the monkey nose that smells like cherry farts. I do like the mint monkey nose at Mayo Radiation, and that one guy that helped me build Legos (Randy).

When I die: I am going to be a gorilla and throw poo at Daddy!

Burned or buried: I want to be burned (like when Thor’s mommy died) and made into a tree so I can live in it when I’m a gorilla.

Big or small funeral: Funerals are sad. I want 5 bouncy houses (because I’m 5), Batman and snow cones

Emilie and Ryan Matthias will honor Garrett’s final wishes by having a Celebration of Life on Saturday, July 14 from 5 p.m. – 11 p.m. at 2377 132nd Ct. Van Meter, Iowa

Note: Symbolic Asgardian burial ceremony and fireworks will be held just after sunset

A private burial of Garrett’s ashes will be held at a later time once his parents figure out how the hell to get his ashes made into a tree and locate a nature preserve, so his tree resides in a protected area.

Donations can be made directly to the family https://www.gofundme.com/garrett-mathiasmathias-familyor in Garrett’s honor to a few of the many non-profits that helped Garrett along the way: The Little Al Foundation (https://www.littlealfoundation.com), The Pink Tractor Foundation (https://www.facebook.com/PinkTractorFoundation) and the University of Iowa Dance Marathon (https://dancemarathon.uiowa.edu)

We are so grateful to the many doctors, nurses, child life specialists, musicians, art therapists, and volunteers that worked tirelessly to cure Garrett of his cancer. The reality for Garrett and so many other children is pediatric cancer is an ugly, nasty beast that leaves a path of destruction. For Garrett and many others before him – cancer kills. Those that are ‘lucky’ enough to survive endure long term debilitating side effects and the constant fear of relapse. We will fight for a cure until no other kids are robbed of their childhood, no other siblings lose their best friends, and no other parents have to bury their babies.

Garrett endured nine months of hell before he lost his battle with cancer. During that time he never lost his sense of humor and loved to tease the doctors and nurses. From whoopy cushions and sneaking clothes pins on their clothes to ‘hazing’ the interns and new staff doctors, he was forever a prankster. Nothing caught people off guard as his response to ‘see ya later alligator’:

See ya later, suckas! – The Great Garrett Underpants

Also Read: Greater Manchester: ‘I murdered my father 12 years ago’, confesses woman